Patients must have easy access to their own data. Caregivers must be able to share the data easily with each other and with their patients. And investigators must be able to exchange their results quickly with each other and ensure that patients benefit from their findings. All of this requires an efficient and secure data infrastructure.
The umcs have a societal role to make active contributions to improving data exchange, registration at the source and reuse of data. The NFU is working in several ways to innovate the data infrastructure:
- Registration at the source: how can we record all care data uniquely and clearly?
- VIPP5: care institutions and patients can share medical data with each other faster and more efficiently.
- Research infrastructure: how can we make research data more accessible and easier to exchange?
- Open Science: available knowledge is nowadays made public earlier and more widely.